I want to talk to other folks with Lyme
Search on FB for support groups. There are quite a few. Start with Lymie 24/7 group.
Hi. I’m feeling SO discouraged. Got overnite bedridden sick for 2 years in 1998. Had cancer a few months later…but the bedridden state was worse. That tells you something. Like everyone else, it was diagnosed as CFS and a myriad of other things and I have been unable to work since then, altho not bedridden since. 4 years ago it was finally correctly diagnosed as Lyme. Altho I usually do alternative stuff, at that point, I did a years’ worth of twice daily Lyme chemo of all sorts, thru a port at home. Took 6 months to finally start to feel better and I did! 3 months later was in a car accident which, aside from the neck injury…which is now better, after 1.5 years……it also flipped me into a bipolar state, which I understand can happen for lymies…..I went on drugs, and am now just titrating off of and going on Empower Plus. I go up and down physically all these years, but the last 6 months have been very difficult, lyme-wise and with all the resulting complications of having it all these years. I usually am positive and hopeful, but not right now. I am worn out. I am scared it will always be like this. I hope this becomes a deep/surrender moment, or whatever I need….but for right now I am just scared and sad and worn out. I appreciate your site. When I first got sick and went to a support group, it was so negative…..it is just occurring to me to look online, and I appreciate all that you are sharing!
Yes, it can be a true roller coaster ride. Being empowered and positive is so important in the process, so long as it doesn’t exclude making peace with all the negative thoughts as well. If you look at the teleconference page you will see that we hold a free teleconference call every other Monday to provide support around various topics. It might be helpful to you to join us. Wishing you all the best! xoxo
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